Understand your diagnosis
Myeloproliferative Neoplasms—Patient Version - NCI
U.S.; online education worldwide
Open official resource ↗PATIENT & CAREGIVER LIBRARY
Myelodysplastic neoplasms (MDS) resources
Find information, people to talk to and practical help for myelodysplastic neoplasms (mds).
Start here
Connect with support
MDS Foundation — educational resources
U.S.; education worldwide
Open official resource ↗Make a practical plan
Explore financial help, prepare questions, and keep your care-team contacts together.
Download planning sheets →Also included: services that help people with any cancer.Browse all cancer types →
Myelodysplastic neoplasms (MDS) support & information
21 resources · Showing 1–12
Education
Myelodysplastic neoplasms (MDS) resource Myelodysplastic Syndromes Treatment (PDQ) - NCI
Patient-oriented information about myelodysplastic syndromes and treatment discussions.
Online resource · Visit the official website for contact options.
- Where
- U.S. nationwide
- Who / cost
- Free online education. Use with your treating team; not a personalized treatment recommendation.
How to start & what to confirm
- First step
- Use the official contact above to ask which service fits your needs and how to get started.
- Hours & languages
- Confirm current contact hours. Ask about your preferred language or interpreter access.
- Before applying or booking
- Confirm the service area, diagnosis and age requirements, costs, current availability, and any required documents. For hospital programs, ask whether you must receive treatment there.
- Program note
- Confirm current program participation requirements directly.
- Official sources
- Source 1 ↗
Navigation
Myelodysplastic neoplasms (MDS) resource Blood Cancer United — information specialists
Blood cancer information and connections to support services.
- Where
- U.S. nationwide
- Who / cost
- Patients and caregivers; program-specific eligibility.
How to start & what to confirm
- First step
- Use the official contact above to ask which service fits your needs and how to get started.
- Hours & languages
- Confirm current contact hours. Ask about your preferred language or interpreter access.
- Before applying or booking
- Confirm the service area, diagnosis and age requirements, costs, current availability, and any required documents. For hospital programs, ask whether you must receive treatment there.
- Program note
- Information specialist contact appears on the official assistance page.
- Official sources
- Source 1 ↗
Education
Myelodysplastic neoplasms (MDS) resource MDS Foundation — educational resources
MDS educational materials and support information.
CALL800-637-0839
U.S. organization phone
- Where
- U.S.; education worldwide
- Who / cost
- Patients and caregivers; outside U.S. phone 609-298-1035.
How to start & what to confirm
- First step
- Use the official contact above to ask which service fits your needs and how to get started.
- Hours & languages
- Confirm current contact hours. Ask about your preferred language or interpreter access.
- Before applying or booking
- Confirm the service area, diagnosis and age requirements, costs, current availability, and any required documents. For hospital programs, ask whether you must receive treatment there.
- Program note
- Listed on official source; response and intake not tested.
- Official sources
- Source 1 ↗
Cancer-type education
Myelodysplastic neoplasms (MDS) resource Myeloproliferative Neoplasms—Patient Version - NCI
NCI patient information and links for this cancer or age group.
- Where
- U.S.; online education worldwide
- Who / cost
- Free education; central contact serves all cancers, not a disease-specific clinic.
How to start & what to confirm
- First step
- Use the official contact above to ask which service fits your needs and how to get started.
- Hours & languages
- Confirm current contact hours. Ask about your preferred language or interpreter access.
- Before applying or booking
- Confirm the service area, diagnosis and age requirements, costs, current availability, and any required documents. For hospital programs, ask whether you must receive treatment there.
- Program note
- NCI central contact is shared; no dedicated disease hotline implied.
- Official sources
- Source 1 ↗ Source 2 ↗
NavigationINTERNATIONAL
Support for any cancer Australia — Cancer Council
Cancer information and connections to support through state and territory Cancer Councils.
- Where
- International — Australia
- Who / cost
- Australian service; short numbers may not connect from abroad.
How to start & what to confirm
- First step
- Call the domestic support line or choose your state or territory contact on the official page. Ask about local services and any eligibility or charges.
- Hours & languages
- Confirm current contact hours. Ask about your preferred language or interpreter access.
- Before applying or booking
- Confirm the service area, diagnosis and age requirements, costs, current availability, and any required documents. For hospital programs, ask whether you must receive treatment there.
- Official sources
- Source 1 ↗
Education
Support for any cancer Dana-Farber — online second opinion
A remote specialist review offered through Dana-Farber’s online second-opinion program.
MESSAGEContact form on official website
Program information and access
- Where
- U.S. nationwide
- Who / cost
- Paid service; the official page listed $3,000 when checked September 9, 2026. Confirm current pricing and coverage.
How to start & what to confirm
- First step
- Check geographic eligibility and the current written fee before enrolling; ask which records, pathology and translations are required. Discuss the report with your treating physician.
- Hours & languages
- Confirm current contact hours. Ask about your preferred language or interpreter access.
- Before applying or booking
- Confirm the service area, diagnosis and age requirements, costs, current availability, and any required documents. For hospital programs, ask whether you must receive treatment there.
- Official sources
- Source 1 ↗
Caregiver
Support for any cancer Family Caregiver Alliance
Caregiving information and connections to local services and practical support.
- Where
- U.S. nationwide
- Who / cost
- National information; direct services and eligibility vary by location.
How to start & what to confirm
- First step
- Call for guidance or use the Family Care Navigator to locate resources in your state.
- Hours & languages
- Confirm current contact hours. Ask about your preferred language or interpreter access.
- Before applying or booking
- Confirm the service area, diagnosis and age requirements, costs, current availability, and any required documents. For hospital programs, ask whether you must receive treatment there.
- Official sources
- Source 1 ↗
NavigationINTERNATIONAL
Support for any cancer Ireland — Irish Cancer Society Support Line
Cancer nurses provide information, local-service guidance and practical support.
- Where
- International — Ireland
- Who / cost
- Irish service; domestic freephone numbers may not connect from abroad.
How to start & what to confirm
- First step
- Call Monday–Friday, 9 a.m.–5 p.m. local time, email, or request a callback through the official service page.
- Hours & languages
- Confirm current contact hours. Ask about your preferred language or interpreter access.
- Before applying or booking
- Confirm the service area, diagnosis and age requirements, costs, current availability, and any required documents. For hospital programs, ask whether you must receive treatment there.
- Official sources
- Source 1 ↗
Clinical trials
Support for any cancer NCI — clinical trial search help
Information specialists can help you navigate cancer trial searches and discuss questions to take to the study team.
- Where
- U.S. nationwide
- Who / cost
- Search assistance is not enrollment or a recommendation for a particular treatment.
How to start & what to confirm
- First step
- Have your diagnosis, stage, biomarkers, prior treatments and travel limits ready. Contact the trial site to confirm recruitment and actual eligibility.
- Hours & languages
- Confirm current contact hours. Ask about your preferred language or interpreter access.
- Before applying or booking
- Confirm the service area, diagnosis and age requirements, costs, current availability, and any required documents. For hospital programs, ask whether you must receive treatment there.
- Official sources
- Source 1 ↗
Education
Support for any cancer NCI — finding care and a second opinion
Information on finding cancer care and seeking another opinion about a diagnosis or treatment plan.
- Where
- U.S. nationwide
- Who / cost
- Confirm program eligibility and availability directly.
How to start & what to confirm
- First step
- Ask which records the reviewing centre requires, whether a referral is needed, and how to coordinate the review with your treating team.
- Hours & languages
- Confirm current contact hours. Ask about your preferred language or interpreter access.
- Before applying or booking
- Confirm the service area, diagnosis and age requirements, costs, current availability, and any required documents. For hospital programs, ask whether you must receive treatment there.
- Official sources
- Source 1 ↗
Supportive care
Support for any cancer NCI — palliative care in cancer
Palliative care addresses symptoms and physical, emotional and social concerns. It can be provided alongside cancer treatment.
MESSAGEContact form on official website
Program information and access
- Where
- U.S. nationwide
- Who / cost
- Confirm program eligibility and availability directly.
How to start & what to confirm
- First step
- Ask your oncology team about a palliative-care referral. Read how this differs from hospice and discuss the goals of care that matter to you.
- Hours & languages
- Confirm current contact hours. Ask about your preferred language or interpreter access.
- Before applying or booking
- Confirm the service area, diagnosis and age requirements, costs, current availability, and any required documents. For hospital programs, ask whether you must receive treatment there.
- Official sources
- Source 1 ↗
Clinical trials
Support for any cancer NCI — paying for clinical trials
Explains the distinction between research costs and routine patient-care costs.
MESSAGEContact form on official website
Program information and access
- Where
- U.S. nationwide
- Who / cost
- Confirm program eligibility and availability directly.
How to start & what to confirm
- First step
- Ask the study coordinator for a written breakdown of sponsor payments, insurance billing, travel and other out-of-pocket expenses before consenting.
- Hours & languages
- Confirm current contact hours. Ask about your preferred language or interpreter access.
- Before applying or booking
- Confirm the service area, diagnosis and age requirements, costs, current availability, and any required documents. For hospital programs, ask whether you must receive treatment there.
- Official sources
- Source 1 ↗
SUNRIDGE MEDICAL
Printable patient planning tools
Free, one-page worksheets on Sunridge letterhead. Download, print, and bring them to your next conversation. No sign-up required.
Download all five tools (PDF, 5 pages)
Questions for my next appointment
Choose your priorities and record the next steps.
Download PDF · 1 pageMy care-team contact sheet
Keep clinician, after-hours, and support contacts together.
Download PDF · 1 pageFinancial-assistance preparation
Prepare documents and track your application.
Download PDF · 1 pageMy treatment-travel checklist
Organize appointments, lodging, transportation, and backup plans.
Download PDF · 1 pageMy caregiver planning sheet
Share responsibilities and make room for caregiver rest.
Download PDF · 1 page